Quote:
Originally Posted by cait24
I am on 60 mg x 3 and 180 mg at night of mestinon. It used to be 90 mg during the day, but they decreased it when I went on 40 mg of pregnisone.
They fiddled with my dose for 5 month until i got to this dose. I found more frequent doses (every 4 hrs) made me feel better than the higher dose of 90mg.
I start IVIG in a couple weeks and I am going to ask to go on cellcept as they wean me off the pregnisone. The pregnisone has made the MG more stable and I am grateful for that. I am also less fatigued but not stronger. I no longer sleep 15 hours a day.
kathie
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When I was diagnosed in 2005 my doctor has had me on 180mg of mestinon 2 times a day, and that works great but as of late my body either is getting used to it or what If I take the perscribed amount my body tells me I have taken too much like I oded on it, the severe diaria the vomiting and the occastional passing out but I didnt take to much just the 180mgs as persribed so I dropped the dose down by half a tablet or 150mgs but can still feel the weakness though