Quote:
Originally Posted by jennq78
I have CRPS in my left foot. I was treated and dx right away by an awesome dr and was put in to remission after PT. I was fortunate enough not to experience the severe pain that I could have. Don't get me wrong, I had pain, but it's bearable.
I'm concerned because about 3 weeks ago, my pain (the same I had before) is coming back along with temp changes.
Now I'm experiencing something new..... I've been getting cramps that don't go away with massage ( and BOY do those hurt) along with the feeling that I can't lift my foot at times. I have to think about walking without dragging my foot. It's not all the time, but has happened a few times.
Am I coming out of remission? Is this weak foot feeling part of the CRPS?
I will have to get a new dr because I have moved from VA to CA since the first episode. Not looking forward to dealing with someone new.
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No kidding!!! Good luck with finding a doctor in California. On the good side of things, I grew up in California and just love it! We moved to Arizona 6 years ago, and I miss CA so much!!! What part of CA, if you feel OK about sharing?
One of the scary things about this disease is the remission aspect - it's pretty scary having that looming monster in the background. RSD comes up out of the blue - with me, it was post-surgical complications, and with my daughter, it was a simple stress fracture. We're both in remission - mine went away right before my first spinal block when I tore my rotator cuff, and my daughter's went away after a relatively new (and painless!) treatment called Calmare. However, she still has a LOT of pain in her leg and foot because she was in a surgical boot for 9 months (it refracted) and she has a massive case of plantar fasciitis. I don't know about the lifting the foot feeling, but perhaps the cramps are from plantar fasciitis? Is it worse first thing in the morning? We're trying out one of those boots that you sleep in that bend the foot back a bit - I'll update the board on how it works in a few weeks.
One thing that I hope you can do in California is to go to Yosemite National Park, one of the most beautiful places on earth. I still have pain issues because of fibromyalgia, and there's nothing like beauty to help take the edge off of pain. Blessings to you, and I hope you find a good doc soon and find some treatments that will put you into remission again soon!