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Old 05-14-2013, 10:39 AM
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DizzyLizzy DizzyLizzy is offline
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Join Date: Dec 2008
Location: Minnesota
Posts: 222
15 yr Member
DizzyLizzy DizzyLizzy is offline
Member
DizzyLizzy's Avatar
 
Join Date: Dec 2008
Location: Minnesota
Posts: 222
15 yr Member
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I have an update....

I am having my 5th IV steroids today, thank goodness!

I am feeling much more balanced, I can walk a ton better, and without any cane even. My thoughts seem to be getting clearer and I can actually find my words most of the time! The 'hug' is gone too.

And...the muscles in my neck and shoulders also seem to be doing much better with the steroids? I was not expecting that, but am certainly not going to complain, I'm thrilled!

My question...my Dr. wants me to start on Ampyra for my drop foot and heavy legs and I should be receiving it in the mail by Thursday. Since being on steroids, my walking has improved so much that I am not sure that I should start on Ampyra? I will be sending a note up to her office today, but am curious about what others have experienced?
__________________


Amy



DO WHAT makes you happy, Be with WHO makes you smile, Laugh as much as you breathe & LOVE as LONG as you LIVE




.

July 2006- First significant SXs, suspect it started back in mid 1990's
1/21/09 - Positive MS Dx
2/17/09 - 2nd Positive MS Dx
4/2/09 - MS Dx 3rd Neuro - finally found the Dr. who has the characteristics I was looking for
.

10/8/09-optic neuritis flair, Cog Fog, chronic headaches
5/4/09 - 12/15/09 Copaxone
1/15/2010 - First Tysabri Infusion - 3/25/16 - Last Tysabri Infusion
3/3/16 - signed the documents to start the Lemtrada journey
4/25/16. Lemtrada begins.
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"Thanks for this!" says:
SallyC (05-14-2013)