I want to first welcome you to Neuro Talk. On this site you will never be alone. Nobody should have to face PN alone. What is important is that you continue your search for help. It is out there, and sometimes it takes a great deal of effort to find the doctor willing to listen to you. If you have to get angry about it, use the anger for the good and start banging on some doors. I go to a physiatrist. This is a doctor who specializes in pain first, and then trys to help you on a cellular level. If you post where you are near, what town, maybe someone on this site, especially the PN forum, will tell you about a doctor near by. You need help to deal with this. It hurts. I have that, or RSD in my left foot and ankle. Not been DX'd as it is one or the other. It has not spread.
I will be here to talk to. Nobody can do it on their own with severe medical issues. Is your family not helpful at all? Compassion? I have just a few friends who understand my medical problems. That being said, I have lost friends too. It hurts.
Do you do anything to try and distract yourself? sometimes this works. I do have medicaiton, but I try very very hard not to take any.
Please keep trying to find help. Don't give up. There is more to life than just pain. I take many suppliments, and over the course of the last year, I have gotten better. I was in a wheelchair last year. I am walking now, but it does give me some trouble. Please keep in touch. I will keep you in my thoughts and prayers. ginnie