Im getting very nervous now.. I have no choice but to keep appointment. COMP>>> and all. plus I would be remiss I think to throw away all the work My neurologist put in to get me there, he believes in me and truly wants to help; of course im also scared because he admittedly is a novice still regarding RSD. but he was the one whp dx,d it and he is learning with me..the first dr I ever met still willing to learn.. but of course his mistakes can cost me as well..
any way the DR I have an appointment with is Dr Ronan SHecter. and I am going mainly for an evaluation and consultation. not for treatment.. so ?? I dont know maybe that will be a difference for me. I dont really know.
Its funny how one 3 phase bone scan can give you the diagnosis but another can say you are fine... To be certain, after four years of this, I am positive of RSD as is My neurologists, and my pain management dr has no doubt. in fact he was trying to stop the second test as he said it is no longer a valid test for RSD... I do want another radiologist to read the scan because what the lady at my ortho,s said to me is all that was written on the results of the bone scan. no evidence of RSD diagnosis invalid,, but he didnt mention anything els about the scan ..oye the fight just got harder. thankfully I just got a new primary DR for my general health and she is learned in RSD in fact she see 5 other people with it, and she agrees it is RSD(hello!!! color change, sweat, frail and rigid nail growth, lack of hair growth ,soars, swelling, I mean come one people how many of the symptoms (visually ) do you need before RSD is the only answer for them. do they think I like these test.. yes Irradiate me for no reason, or.. shove those needles in my spine legs arms bones and then electrocute me,, or sure shove those injections into my spine though each time I risk paralysis.
ohh yes give me those pills.. kill my kidney / liver etc I want to die young.
((ALL sarcasm by the way)) all I want is to get through my day with low pain levels. right now I have a tooth in need of root canal, ..hello tooth pain the worst right.. well its preferralble to what I feel in my feet legs neck back and arms,......ok I bubbled over again.. sorry.. thank you all for posting your experiences ,, please keep them coming, so others can learn as well.(your not alone,).. I wish you all better days, and I keep you all inm y thoughts and prayers every day.