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Old 05-16-2013, 02:48 AM
nmdicke2 nmdicke2 is offline
New Member
 
Join Date: May 2013
Posts: 4
10 yr Member
nmdicke2 nmdicke2 is offline
New Member
 
Join Date: May 2013
Posts: 4
10 yr Member
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Quote:
Originally Posted by LiveLoveandTrust View Post
Thank you so much for your kind words.

The thing is, NONE of these doctors are really current treating physicians. My PCP has moved to a new practice that doesn't accept my insurance and it took me many visits to many different specialists to find out what my diagnosis actually was. I have documentation saying I'm male on one visit (a "well developed male" which really made me laugh), one saying that I have inappropriate judgement and insight in social situations with no further explanation- I honestly think they wrote inappropriate when they meant appropriate because I don't even drink and certainly don't use drugs! I've never gotten so much as a speeding ticket! How much lack of judgement must I have? LOL. I was also on a medication at one point that was approved for siezure disorders/bipolar disorder but was being used off-label for treatment resistant depression. I tell my doctors that I do not have bipolar disorder, sign a release for them to get my records, and explain that I do have major depressive disorder- I get documented as having bipolar I and II which isn't even possible. I tell a doctor that I have sympathetic nervous system disregulation that looks a lot like PTSD per my neuromuscular physical therapist but that I did not have PTSD but it was documented that I had PTSD and not the disregulation which is common in people with Ehlers-Danlos which I DO have! I get documented as having generalized anxiety disorder, depression, major depressive disorder, post partum depression, post partum anxiety, and mood disorder NOS when, in reality, it's just freaking plain anxiety and depression. That's it! It's not even possible to have all these diagnoses at once!
It took me 2 years to finally get SSDI. I had to appeal and appeal and appeal all the way to the last where we would sue in federal court. my surgeon said clearly, "...she is totally and permanently disabled...unable to work." but because my diagnosis was not in the SSDI diagnosis book and was a new medical disorder, the worker automatically denied my application. The other stumbling block was that I had lots of education and SS figured I could work --(?with my mind I guess...) I finally started receiving benefits right before we were to go into federal court to sue. I learned: tell the truth.don't ever quit. and LOTS of healthy people who don't enjoy work apply for SSDI benefits and make ALL of us look like bums so the SS folk get hardened to all people with disabilities. And I've learned that working is much better than living in poverty!!
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"Thanks for this!" says:
eva5667faliure (05-16-2013)