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Old 05-16-2013, 03:45 AM
parbie parbie is offline
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Join Date: May 2012
Location: Orange County
Posts: 188
10 yr Member
parbie parbie is offline
Member
 
Join Date: May 2012
Location: Orange County
Posts: 188
10 yr Member
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Thanks Marc for sharing that info about Dr. Jordan. I have been through so many Drs and wrong diagnoses already and do not want to go that path again, or try anything that won't help, and those procedures don't sound like they would.

I will def visit Ando or James when I come to SoCal. I know a surgery will not fix my winged scapula, only time will heal the nerve. But it is just very interesting, for lack of a better word, that it is was the only thing that Annest was concerned with when I saw him for follow up and that he was even wrong about that.

I think what you said about Annest and Sanders makes sense, but still, if a surgeon says "I am removing your c-rib for sure, and your first rib if necessary", not "I am removing your c-rib and/or first rib if necessary", then he should have done just that. I never expected him to not removed it. He just does not want to take responsibility for making his mistakes, but of course no surgeon really does.
I hope I can find a surgeon who actually knows what he is doing and DOES what they he says he will do. Even a short convo with Angle's assistant Gina supported my conclusion from the day of my surgery that my c-rib SHOULD have been taken out, I chose a surgeon who said he would do so for a reason. Anyway, it happened, now I have to figure out my next step. I am also worried about how I can minimize the recurrence of scar tissue formation the second time around. Marc, what are you and Dr. Angle doing to work on that again? I recall you mentioning that in your thread.

I have an appt also coming up with an orthopedic surgeon who I was initially going to see about my knee (knee cap is loose or something :S) but now that I am realizing my entire body is experiencing myofascial pain and spasms, I am going to see him, but for the labral tear I have in my shoulder and see how much that is playing into my whole condition. My last physiatrist also diagnosed me with "Impingement syndrome", so now I have True Neurogenic TOS on both sides, Pec Minor Syndrome, and Impingement syndrome, as well as a Right shoulder labral tear and winged scapula. I really hope there is nothing more coming...

Quote:
Originally Posted by nospam View Post
I may be a dissenter here, but Dr. Jordan was a waste of time and money for me (no insurance coverage or reimbursement for me). He is focused on treating TOS non-surgically with his EMG and ultrasound guided procedures. His diagnosis of me (scalene readhesion and cervical dystonia) was completely wrong once I saw a neurologist specializing in dystonia and then Angle went in supraclavicularly.

I feel that Sanders and Annest are predisposed on leaving ribs in based on Sanders old publications suggesting scalenectomies and pec minor tenotomies should be the focus. Why not open as much space as possible by getting rid of c-ribs that should not be there and the 1st rib which isn't necessary?

My physiatrist cut me loose as well after I had RF ablation which helped but I developed horrible SCM spasms (which trigger points didn't help much). It sounds like you only had shoulder trigger point injections when you likely need cortisone injection directly into a shoulder joint (Acromioclavicular or Glenohumeral). You should see a Sports Medicine or Orthopedic Shoulder Surgeon for this. I had an MRI which showed the AC joint and supraspinatus tendonitis and potential small supraspinatus tear.

If you come to So Cal you can schedule a free 15 min consult with James or Art at Ando & Aston physical therapy and get their opinion on your winged scapula. I'm not sure surgery alone will fix that.
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