I have most recently found out that I have Hydrocephalus, from being admitted to the hospital for extremely high blood pressure. Since then , I have been told by a neurosurgeon that I will need brain surgery that will save my life, and if I do not have this procedure, I will certainly die.

I have a pretty good support team of friends, but they know nothing about this disease. I have researched intensely, but it is all clinical information. I would like to hear of others' personal experiences, either patient or caregiver. Thank you.