Quote:
Originally Posted by cait24
I am on 60 mg every 4 hours and 180 mg at night of mestinon. Like you, I have a central small area where I can see without double vision, anything outside of the small circle is double vision. I have to walk without moving or turning my head so that I do not fall into the wall. The mestinon has made my vision better, but this is as good as it has been since the MG onslaught. I am getting prisms in my glasses to help. It is manageable and I have learned to live with the quirks. If I have a bad vision day, I put ice bags on my eyes and it helps.
I am more concerned with my leg muscle fatigue, breathing and swallowing problems. They are less predictable. My eyes are much more constant and stable.
kathie
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I too have the leg weakness and fatigue although they have been markedly reduced since starting Mestinon. Some days I feel like I can walk a mile, other days I have little energy or stamina at all. I'm not complaining because before I had no good days at all.