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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Mestinon only temporarily relieves symptoms. Have they tried any other treatments that get more to the source of the problem? Steroids, cellcept or IVIG? I am currently being weaned off steroids and I am going to try IVIG next week. I have had some improvement with pregnisone. I have more stamina but not more strength.
Have they scanned your thymus or tested your thyroid? I was found to have autoimmune Hashimotos hypothyroidism as well. A lot of people with MG have thyroid issue too.
kathie
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