Quote:
Originally Posted by cait24
Mestinon only temporarily relieves symptoms. Have they tried any other treatments that get more to the source of the problem? Steroids, cellcept or IVIG? I am currently being weaned off steroids and I am going to try IVIG next week. I have had some improvement with pregnisone. I have more stamina but not more strength.
Have they scanned your thymus or tested your thyroid? I was found to have autoimmune Hashimotos hypothyroidism as well. A lot of people with MG have thyroid issue too.
kathie
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I haven't tried any of the other drugs. I'm not too sure about taking prednisone as I am a diabetic. If my symptoms get much worse I'll consider it. The only other autoimmune disease I have that I know of is psoriasis. I've had that since I was a teenager.
No one has mentioned the thymus thing to me. I assume that's because I'm 62 years old and I've heard they don't recommend that to older folks.
My thyroid test came back abnormally high on one test but was normal on the followup so I don't know if that's part of the problem.
I have lots of muscle strength now but little stamina. I'm going to mention that to my neuro when I go back.
One other question: You mention you have swallowing problems. I was having a lot of those. I'd get strangled on my own saliva. Now, occasionally, I start to swallow and it's like I get halfway through the process and my throat just freezes up. I just can't finish the swallowing. No strangling or anything. After a few seconds it "unfreezes" and I swallow normally. Is that anything like what you have?