Hi I am sorry but can relate a lot. Some days are easier then others to cope too. I give you credit for all the hard work you are doing in OT and PT. Have you tried pool therapy? You stated a bath helps and same for me.
I wish I had words of comfort or advice. Sometimes my head spins because out of the blue basically a new limb or area flares. I try to stay in the day and focus on what I can do to get through it in the best way possible. This is easier said then done of course.
Hope you feel better