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Old 05-19-2013, 10:30 AM
sandy56 sandy56 is offline
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Join Date: Apr 2013
Location: central florida
Posts: 125
10 yr Member
sandy56 sandy56 is offline
Member
 
Join Date: Apr 2013
Location: central florida
Posts: 125
10 yr Member
Smile Doing better

Thanks Annie and Huntress

I think my prednisone is kicking in and I may need less mestinon. I had been having more queasiness after taking my mestinon for the last few days. I had also noticed minor tingling in my mouth. Now that I think back on yesterday; I realise I felt much worse after my noon dose. It was about 30 min after taking my 4pm dose that I had the significant numbness and tingling. It lasted about 90 min. I did not take my 8 pm dose and felt better and better. I slept well with good O2 sats and felt good this morning.

I am taking my mestinon 3 times today (not 4) per the on call docs instruction. I am on a generic. I took my 8 am dose and feel fine. I have still been having significant diplopia and ptosis even with the mestinon.

Yesterday was hot and humid here(around 90°) and I had been out doing errands all morning. This is a very confusing disease and it is hard to be sure what is going on. Do I need to rest; take more meds or take less meds? lt is difficult to know what to do.
Glad you guys are here
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