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New Member
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Join Date: May 2013
Location: Florida
Posts: 1
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New Member
Join Date: May 2013
Location: Florida
Posts: 1
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Hello
I my name is Jenny and I have Arnold Chiari Malformation and Syringomyelia, I am planning a trip to see the best specialists in the country to pursue the only surgery that will give me some sort of relief, posterior fossa decompression surgery. Unfortunately I have a rare condition so a lot of doctors here in Florida are not educated with what I have. I have an image of my spine and want to know if anyone can tell me if I am looking at my syrinx? Is the white portion my syrinx??? I have MRI's from 2009 and the portion where they say my syrinx is what not this large, so I am trying to find out if it has gotten bigger, the report says syrinx is stable...but they did not have my records to compare so how would they know if it was stable?
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