Quote:
Originally Posted by AynaDee
It does suck quite a bit. I try to stay positive, but realisticly, I am prepared (hopefully) for the worst. I hope to be in decent condition by my 30's, but seeing how ive progressed through the years, I dont EXPECT to be in that great of condition by then.
I do what I can to try and keep my ms in chill mode (except using a dmd).
I do yoga as my exercise.
Walk as much as I can.
Try to get the proper amount of sleep.
Cut red meat out of my diet -trying to cut out dairy, eggs, and yeast but thats super hard.
I only drink soda here and there.
And I take vit d, b12, b6, calcium, co q10, fish oil, flaxseed oil, and grape seed extract on a daily basis.
I feel that I am doing all that I can to keep progression at bay.. Apparently that just makes my ms even more angry with me.
It is absolutely 100% craziness how this disease affects us all in different ways.
Im more worried about figuring out what ms really is versus finding a cure.
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You don't take any DMD, injections, pills....anything? to slow the progress?
I was 35 when I got the official word that I in fact have genuine, RRMS, but had attacks before I got going on what was wrong, so I most likely had it active in me for some time, years before actually doing something about it. It took a fall from extreme dizziness to get into the ER and on my way to getting treatment and what was wrong.
Right now at 36 I feel "ok" I can't run all that well, but walking is good, no balance issues, no canes or walkers and all that, but my legs get tense real fast and I have to sit to let them unwind. I "had" a small incontinence issue, despite everyone telling me it probably won't happen
My last MRI showed it was pretty benign ATM, but a few months ago I had a super attack... I got sick at the same time and it was a complete mess. I had to hold onto my 61 year old mom's arm to get around.... I was so tired and in pain that I didn't care what it looked like. Right now I am riding my bike all over the place, drinking lots of water(like you no soda) I eat tons of greens and I have also started on Fish Oil and Vit-D.
So yes...My MS is completey different than yours... I'm so sorry you have this much trouble so young already and I hope the MS in you will STFU soon and let you be mobile for a long time.
The scariest thing about having this crap is wondering if and/or it will suddenly decide to go haywire and take me down, full disability alley.
Hopefully it stays inactive and benign as my MRI has shown last time.