I am currently getting IVIG (thank goodness!!!).. but have been having a problem the past few months when IVIG starts wearing off with worsened abdominal/trunk weakness.. Does anyone else get this?
Most of my weakness is proximal and face. I have a sleep study scheduled, but still have about a month to go before that happens.. It's just so anxiety provoking to be so weak in the trunk - when I got admitted initially my PFT's were low, trunk was so weak, and I coudlnt' breathe well at all.. last week at my neuro apt my PFT's were great, but as the IVIG wore off I felt worse.. I feel like if I press down using my ab's that I am going to rip my muscles off of my ribs? It kind of hurts in a strange way.. Anyone else have these symptoms? Even going to the bathroom can be hard at times, then about 4 days after IVIG things get easier for a week or so.. but never "normal"