Sigh. No answers. My sural nerve damage is slightly worse than 4 years ago. I have some slight motor and sensory damage in my feet in nerves that have never been tested before. My motor/sensory function in upper extremities is normal. I probably should get copies of the testing and learn more about it.

Back to the rheumatologist, who wanted to hear what neurology said. Which is--they feel that despite normal lab work because of family history and positive ANA 10 years ago--I probably have a slowly progressing autoimmune based neuropathy; currently affecting my left lower extremity. Based on normal upper extremities, she didn't feel insurance would even cover a test for CMT.

I just feel pretty sad right now. Like I am spinning in circles with no plan.