Quote:
Originally Posted by HowseoFpain
I my name is Jenny and I have Arnold Chiari Malformation and Syringomyelia, I am planning a trip to see the best specialists in the country to pursue the only surgery that will give me some sort of relief, posterior fossa decompression surgery. Unfortunately I have a rare condition so a lot of doctors here in Florida are not educated with what I have. I have an image of my spine and want to know if anyone can tell me if I am looking at my syrinx? Is the white portion my syrinx??? I have MRI's from 2009 and the portion where they say my syrinx is what not this large, so I am trying to find out if it has gotten bigger, the report says syrinx is stable...but they did not have my records to compare so how would they know if it was stable?
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Hi Jenny,
I have just had the exact same surgery as you are about to undergo. You are correct, neurosurgery is not common. But that doesn't mean it can't be helped! It is a simple procedure, compared to some others. I suggest that you get some MRIs urgently of your spine, particularly of your cyrinx and your lower brain stem. I am from Sydney and about 5 months ago, I had the exact same thing done. Speak to a neurosurgeon urgently! This surgery will potentially save your life! Take action and most importantly be brave! *edit*
Best of luck to you! X