Thread: Neurontin?
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Old 05-12-2007, 04:59 AM
artist
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artist
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Hi,

Yes, in our links sticky at the top of the page, you'll find lots of good (and recent) info. In particular I'd recommend reading the Dutch Guidelines to CRPS Type1, which came out very recently - I've posted links to the sites there (the Netherlands are doing far more research into RSD/CRPS than anyone in the world). Also look for links posted by fmichael, Buckwheat, Sandel and IHH, among others, they always post interesting info.

BTW, the Hooshmand site is one that often gets pounced upon by people recently diagnosed with RSD - it seems at first glance to be a sea of information in a world of none; but just check out whatever you find there before you take his word as any kind of law I don't think you'll find too many veteran RSDers quoting Hooshmand (er, he thinks amputation is a fad?? - see, he's such a bad writer, hard to see quite what he means half the time...)

As far as neurontin goes, we also have many people who have tried it and found that it didn't suit them at all. But it seems nowadays to be the doctors' first line of defense - most people take what their doctors prescibe, not what they've prescribed themselves. I feel fairly lucky that it does push the pain into the background, for me - makes life a bit easier for both me and my doctors.

I'm not based in the US, so know nothing about specialists there, sorry.

all the best

Last edited by artist; 05-12-2007 at 11:39 AM. Reason: always something...
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