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Member
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Join Date: Dec 2012
Posts: 205
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Member
Join Date: Dec 2012
Posts: 205
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Yes, trust your instinct. You can ask to see another doctor within the hospital. Find a doctor specifically who has had experience with mtbi / PCS.
My neuro-ophthalmologist was very emphatic when she was diagnosing me that many doctors still try to dismiss PCS/mtbi as "negligible" psychological symptoms.
While anxiety/ptsd, etc do occur, PCS/mtbi also have other causes to its many symptoms. Just because you have a predisposition to migraines does not rule out other factors that are contributing to lingering PCS/mtbi.
My neurologist, while open and flexible to mtbi, dismissed my months of vertigo, nausea and dizziness saying they would resolve on their own.
My vision therapy wasn't progressing after 4 months so I trusted my instinct and others on this forum who said to go to an ENT.
I pursued getting an appointment with an ENT who did VNG testing to identify that I do have central and peripheral vestibular dysfunction. I have another brainstem/ cerebellum MRI scheduled Friday.
So, when in doubt trust your instincts and advocate for yourself!
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The event: Rear ended on freeway with son when I was at a stop in stop and go traffic July 2012. Lost consciousness.
Post-event: Diagnosed with post-concussion syndrome, ptsd, whiplash, peripheral and central vestibular dysfunction and convergence insufficiency. MRI/CT scans fine.
Symptoms: daily headaches, dizziness/vertigo, nausea, cognitive fog, light/noise sensitivities, anxiety/irritability, fatigued, convergence insufficiency, tinnitus and numbness in arms/legs.
Therapies: Now topamax 50mg daily; Propanolol and Tramadol when migraine. Off nortryptiline and trazodone. Accupuncture. Vitamin regime. Prism glasses/vision therapy. Vestibular therapy 3month. Gluten free diet. Dairy free diet. On sick leave from teaching until Sept. 2014.
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