Having no definite diagnosis is certainly a pain in itself. I suppose I just have to go back to "chronic pain syndrome". The PM was really quite airy-fairy. I said it seemed like CRPS and so would like to try gabapentin, she said she thinks it's probably not CRPS, and gabapentin wouldn't be her first choice even if it was, but why not try it anyway? I don't blame her, I think that's probably the only attitude she can take in this situation, but it doesn't inspire confidence.
I'm sorry about your epilepsy diagnosis. My mum has temporal lobe epilepsy as well vascular dementia (she's 76), and we think a fall due to an absense seizure is probably why she broke her thigh last year, which very badly affected her state of mind, though she did recover relatively well. I guess a fall could be much worse for you (I don't want to worry you, but we need to be realistic, and you've probably worked that out for yourself anyway).
Despite not being Christian, I do sometimes find it helpful to think "these things are sent to try us".