Angelina

I'm sorry you are suffering so much. Having a young child must make it so much more difficult to deal with this horrible disease.

I do hope that you get some relief from your pain and the support you need. It is so difficult to explain this disease to people. No one I know has ever heard of it. Even the two nurses who I spoke with in hospital last week had never heard of it - and one of those nurses was assisting the doctor administering the stellate ganglion block.

Please hang in there.