Quote:
Originally Posted by Angelina55
I just can't take it anymore. It is getting worse by the day. I have developed a new symptom even. At times I feel like there is acid on my leg in spots. And I haven't figured out why or what is causing it. And the pain...OMG! It is a constant 24/7 intense 10. I am just tired of crying all the time. I can't catch a breather. I feel so bad for my daughter because she will accidently hit me and I like almost screem and start crying and I try my hardest to reasure her that it is ok but I know that it hurts her.
I get my results back from my phsyc evaluation tomorrow then if that is ok (which I am sure it will be) then I get my trial SCS thursday. But I have so many fears and worries. What if something goes wrong? What if it makes me worse? What if it doesn't work? I can't keep living like this with no support. A person with this condition can't do it all on their own. And I don't know how to get my family and friends to understand that. That I need their love and help right now. They just don't get it. They just think I am weak. That I am too old to need help. It just breaks my heart that no matter what I would be there for them but when I need someone, no one will help me. I don't know what to do.
I am sorry, I just can't sleep and am in sooo much pain. I just needed to try to "talk" to someone. To let it out. I hope everyone is doing better than I am!  And I hope you all have a wonderful week ahead! |
Hi Angelina , I would really reconsider your scs, the reason being once you have it installed in your back,you will never be able to have an MRI ,even if its removed,the spinal wires that go with the scs are permanent.its a really big deal not to ever be able to have a MRI,also they usually are worthless and taken out anyway.im sorry you are struggling with the pain,I'm having a really bad time with my rsd,I have full body and it attacks all my organs,it's in my stomache rite now,I look pregnant from all the inflammation in my intestines,very painful.thers a dr in sandiego that is using kettamine nasal spray for her patients,I want you to go to her website and see how she is changing lives with this new form of ketamine,she also will tell you why not to get the scs.look up nancy l sajben md . On the Internet and go to her web page.sorry I will give you the address once I find it ,but if you look up her name you will be fine. It's better than the ketamine infusions which I had with dr schwartzmann .reason being cause you can give yourself your treaytments at home,she also uses ketamine losanges with the nasal spray,I hope you get releif soon ,I'm working with my dr now to order it for me,it's so new most drs don't know about it.im always here if you need to let out all the things you are going thru,and I can let out mine too,anywAy good luck Angelina. Soft huggs