Quote:
Originally Posted by southblues
I am negative for all antibodies including MUSK. My doctor made the decision to call my illness myasthenia gravis based on two things.
1. He ruled out everything else.
2. Then he did a trial with mestinon. Since it was miraculous, and I get much worse without it, he said that we have an adequate basis for a myasthenia diagnosis based on clinical exam and drug response.
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I am also AchR negative. I was diagnosed with a positive Tensilon test and repetitive stimulation nerve conduction test. I was having diplopia, ptosis, facial drooping, slurred speech, and moderate weakness of my neck and shoulders.
My neuro doc says this is enough for diagnosis. I think the other tests are much more expensive and insurance may not pay for them. He says if I don't respond to his treatment plan then we can look further
Hang in there
Sandy