 |
Senior Member
|
|
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
|
|
Senior Member
Join Date: Jan 2010
Location: Illinois
Posts: 1,785
|
I found when I was going through similar trouble (spread and worsening pain) and seeing multiple doctors that it really helped me to write out a couple of things and bring with me:
1. A detailed list of all my symptoms, what triggers them (if anything), when they occur (all the time, several times a day, etc).
2. A timeline of my illness and when certain symptoms/pain started up.
3. A list of questions and things I wanted to go over with the doctors.
The main reason for doing this is so that I don't forget anything. Some doctors (most actually) make me feel pretty rushed and like I don't get the chance to go over everything. Or...I will get caught up and sidetracked by something else the doctors says or starts talking about and then don't get a chance to ask my own questions or they questions completely leave my head. This way...I have the list right in front of me. Same goes with symptoms...especially when you have so many going on at once it helps to have them all listed out so I don't forget about any of them which might be important for the doctor to help me.
Another thing that can help is bringing someone with you if you have anyone that can fill that role. It generally puts doctors on their best behavior and they will be less likely to blow you off when they have an audience. Sad that this is the case...but often it is.
I have type I...so my symptoms sound a lot more like your second set...especially the crushing pain. That is the worst I get when I'm in a flare...like the bones are in a vice and being crushed. The stress of this new spread is likely causing your other areas to act up. You need to take it easy, but continue to keep moving. I know the horses are important to you but you may need to take a break from riding for a little while until you sort it all out. Still visit them and make it your goal to get back to that (because you WILL) but focus on doing what you need to right now to get yourself there.
Be honest with the doctors and tell them what your goals are from treatment. You want to get back to your riding, you want to get the pain to a manageable level, etc. Really think about what you WANT from treatment and then make that the focus of what you do in terms of treatment. My main focus with my doctor was to get a specific set of symptoms under control so that I could FUNCTION in my life again. I was less focused on the pain because I had tried many meds and treatments and they just weren't working. When I thought about what would make me happy...it was having my life back and the pain was not preventing me from having that...it was the other symptoms that were keeping me back from returning to my life, my job, etc. What you want first and foremost from the treatment can have a great impact on the approach you and your doctor take in treatment. So really think about it and put that on your list of things to go over with the doctor.
Good luck and take care. I hope they are able to do something for you. If not...move on and find someone who can.
|