Thread: Neurontin?
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Old 05-12-2007, 09:45 AM
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frogga frogga is offline
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frogga frogga is offline
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Join Date: Nov 2006
Location: UK
Posts: 830
15 yr Member
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DEFINETLY!! I'd love a cure!!! Then Kat's but would be kicked right out of the picture :P!

Anyway. I took gabapentin for about a year - no major difference on the pain scale and also made me put on weight. I was a US 6/8 (UK 10/12) before I got this... and with neurontin I gained weight to a point of being US 12/14/16 (UK 16/18/20). It has taken SO long to get the weight down and off again.

I have tried other things like Lyrica, Topomax etc - not sure they worked brill - (I was on large doses of MST etc at the same time).

About RSD specialists.. I don't think there is one. Everyone is individual in this disease and some drs specialise in some procedures which really help some RSDers but not others and vice versa- I guess it depends what you find helps. Some people are really helped from Surgery (SCS type things) or meds or psychological coping skills, or anesthetic stuff (drug pumps/ blocks) etc etc etc...

In 10 or 20 years time I'm sure they will have come up with many types of RSD and hopefully discovered the best symptom reduceer/ CURE for each type.

Love ya

Froggsy xxxxxxxxxxxxxxx
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