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HELLO TO ALL,

I thought it was time to post my story (@ least while I felt up to being in front of the computer) I havent been on in a few weeks due to the joys of RSD/CRPS. I hit my 9yr mark next month and it's not been an easy road what so ever as you all know the joys of living w/this awfaul condition. It started w/me after I changed & rotated the tires on my car, I tweeked something in my hip & back apperently & w/in days I could hardly stand or walk. Prior to this I was active & heathly my daughter & I were always doin something (she was 5 then) I was worried when all the sudden I went from that to hardly being able to stand or walk & I went to doctor after doctor who of course tried to say its all in my head let them deal w/what I am & see how they feel is how I felt it was sooo frustrating! funny thing I met this guy who became like family he told me I know you have what I do, you have RSD I'd bet on it & the doctors said NO NO NO your too young... So after 4yrs of WI weather & doctors not doing a damn thing I moved back to fla which is where I grew up & the weather is alot easier on the body compaired to the WI winters lol.
Anyways after I got here I went to the RSD Foundation in Tampa where they do certian things to actually "test" for RSD/CRPS which I was told stage 1 entire body stage 2 on the right side, that was 5yrs ago now so it's well beyond that but I will say for now Im not in a wheelchair but I walk w/a cane sometimes a walker depending on the day so Im thankful for that. I recently started seeing a doctor who has found that I have athritis (not good @ spelling sry) in both hips the right hip is about 2in higher than the left so he wants me to get fitted for a shoe lift to make my legs more even & both ball joints are deterating. I dont have insurance right now or even a job so gettin the MRI's of my back hips & pelvis are on the back burner for now same w/x-rays of my back, its expensive enough for doc appts every month.
Every single day is a struggle & a fight living w/RSD but I have learned that I can only deal w/each day as it comes, I dont worry about tomorrow cuz who knows how Im going to feel. I wont lie there have been days where I have just wanted to give up & be done w/it I have my days where all I do is cry & feel soooooooo alone I dont have my kids which of course makes it harder cuz they both live out of state so I dont even get to see them which kills me every single day I think thats the hardest of all honestly but thru all of this I've learned I have to just keep fighting no matter what cuz I have 2 beautiful girls who mean more than anything else in the world they are my heart & soul so in order to go visit them I have to fight.
Thanks to all who read this Im glad I have a place to vent & know that there are so many other people like me out there & as my friend Phillip would say "we're special" & if it werent for him being there to answer ?s let me vent scream cry or talk to I dont know what I would have done (he is in his 12th yr of RSD/CRPS now I believe) so if there's anything I can help someone else w/please dont hesitate to ask, Thanks for reading & have a happy day