Hello,

I'm feeling pretty frustrated. First a bit of background information. I have been undiagnosed for many many years. My symptoms were primarily bowel/bladder problems. After surgery for endometriosis my bowel problems have improved. But the bladder stuff is getting worse. I can't feel when I have to pee. I only pee once a day and it comes on all of a sudden and its painful and i have a hard time starting and keeping the flow going. My nephrologist hasn't had any good answers as to why and thinks it might be a neurological issue. But no one gave me a referral to a neurologist, and instead i saw an opthamologist to check out some of the weird visual symptoms I've been having. He did an MRI and they found two small lesions but told me it was nothing to worry about, but they want to follow up in a few months and see if anything has changed. I AM worried. It seems to me that I have a lot of symptoms of MS. Albeit the bladder issues are my biggest concern, there are others like all the little muscle ticks. constant headaches, confusion, mood swings. MY hands sometimes just forget they are holding things and will drop and break cups prematurely. I dont really know what to do. I'm so tired of all this waiting to see how my symptoms change. Its been six months already since MS was first brought to the table. and people keep trying to reassure me that they aren't too concerned. but I don't feel reassured at all Any advice on how to navigate this would be helpful. I feel a bit lost.