I'm sorry you got the diagnosis. It's a tough one, that requires some "educating." Please give yourself permission to take the time to process and adjust and know that it really can take some time to do that.

Everyone is different, especially where medical care is concerned. You may find you see the neuro more early on and then the appts will spread out as you stabilize. If you worsen, you may have to make an unscheduled appt.

I hope the mestinon works for you. Mestinon just treats symptoms and does not address the immune system dysfunction. Some people can make it on mestinon alone, but if you still need additional support, there are immunosuppressing drugs, IVIG and plasmapharesis. No one on here does the same combo and no one has identical results either.

Good luck on your journey. Keep and open mind and listen to your body about what is happening and what you feel you need to do. Please remember that support is only a few clicks away!