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Old 05-26-2013, 06:19 AM
parbie parbie is offline
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Join Date: May 2012
Location: Orange County
Posts: 188
10 yr Member
parbie parbie is offline
Member
 
Join Date: May 2012
Location: Orange County
Posts: 188
10 yr Member
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Quote:
Originally Posted by lokobreed View Post
Parbie: What do you mean as far as your thread and if being unsure - was annest unsure about your diagnosis of having TOS... I have always found the doctors in Colorado (shoulder and TOS) the upmost polite, time giving, and compassionate out of all doctors I have seen - and I have seen many due to my shoulder, elbow and now possible TOS

Also what study are your talking about that Sanders and Annest are working on - I could not find it in your thread - could you please send me this link?

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Also has anyone had these sx's??? The tearing of nerves when walking etc almost makes me thing I do not have TOS and need to get my other side of my clavicle stablaized because maybe it is rubbing against the nerves due to it movign to far posterior at the distal side since the SC joint is loose moving anteriorly - My shoulder doc cant gaurantee me this stabalization procedure will help but he thinks it has a chance as SC injuries cause a varying type of symptoms.
By unsure I meant IMO never have a surgery if a DR especially 2 well known TOS specialists cannot definitively diagnose you with TOS however they still would do your surgery. That just doesn't sit right with me.

As far as the study, it is something they are working on, not published yet but it seems right now their focus is more on research and less on patient care. I mentioned my thread because it shows I went through a ton of doctors before I found out about TOS and then a ton of surgeons before I CHOSE one and flew to Denver from NYC just to have mine done by Annest and Sanders due to their experience and especially because Annest was very caring when he spoke to me and sounded genuine. BUT....right after my surgery, he left the state and I was forced to follow up with Sanders who did not perform the op, he is retired. Annest also did not do what he said he would do during my surgery and barely addressed that. Then during my follow up, I flew back to see him because I was not doing well at all, sx were worse and got new sx..he did not address this, he forgot he didn't remove my c-rib, he had one concern only, which was if my long thoracic nerve that he injured during my surgery was healed and he said it is was and went on and on about how ecstatic he was then he said he can't do anything more to help me and I need to back to pain mgmt. By the way, my long thoracic nerve has not healed, he was wrong about that, he rushed my entire appt. I do love his assistant Kathy though, she has always been nothing but super nice but she is not the Dr you are letting cut into you and the Dr you need to follow up with and the Dr who should remember you especially if he botched your surgery....
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Parbie

-6/20/14 Seroma Drainage Right Side

-7/18/13 Re-do of Right sided Supraclavicular Thoracic Outlet Decompression by Resection of Cervical Rib, First Rib, and Neurolysis

-8/30/12 Unsuccessful Right sided Supraclavicular Thoracic Outlet Decompression via Scalenectomy, Brachial Plexus and C2 through T1 Neurolysis, Resection of fibrous band attachment to Cervical Rib and Pectoralis Minor Tenetomy

Last edited by parbie; 05-26-2013 at 06:21 AM. Reason: type
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