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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Abby, I am just the opposite of you. I have a lot of eye symptoms daily, constant double vision but my new prism in my eye glasses help a lot. I start feeling bad effects of the heat at 70 degrees, by the time it gets to 90, I can barely walk the 20 yards to the mailbox. I have already had the air conditioning on for weeks. Mestinon gives me good temporary relief. I am seronegative but they have not tested me in a while and my MG has had a steady downward trend.
I think your doctor is right about it being a different antibody. While I was home on disability, I did a lot if research on MG antobodies and found there are a lot more antibodies identified by clinical research with different clinical presentations, But there are no commercially available test of them. if you want i can private message you what I found and the links.
kathie
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