Quote:
Originally Posted by Stellatum
I know most MGers have a lot of trouble in the heat, but I don't. In fact, this is the second spring in a row that I've felt much better when things warmed up, and even really hot days don't bother me (I live in southern New England, and we don't have an air conditioner). Last summer I was even able to go to the ocean and bake in the sun.
My neurologist suggested that my heat tolerance, my seronegativity, and my lack of response to Mestinon might indicate that I have antibodies against a different part of the neuromuscular junction, but that's just speculation. My eye symptoms are also mild-to-none. I've never had ptosis, and only a couple of episodes of double vision (lasting hours) since I first came down with symptoms in October of 2009. I tested negative for MuSK and LEMS, too.
I've been having a "good spell" for several weeks now. Don't know how long it will last--but I'm enjoying it while I can. I don't think I'd say I'm in remission, because I still have symptoms. But I'm able to do things I couldn't a month ago.
Abby
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Hello Abby
It's always good for us to hear that someone is doing well; it's inspiring, if it's one symptom or ten. Your post shows us how different we can be. I call it, "MG, with a twist." I'm outside the norm on a symptom. More often than not, I improve as the day goes on. Though quite tired around 3:00 to about 6:00pm, I have a general burst of energy in the evening.