I am just newly diagnosed so I don't have a lot of experience yet. It has gotten to 90 and I am still doing Ok. I don't do yardwork or exercise in the heat. I started with ocular symptoms that progressed to slurred speech, breathing problems and neck weakness. I am seronegative and have not yet been tested for MuSK or LEMS.

Cait-I would love to get those links too, if you don't mind.
Sandy