The first neruro I saw did not think I had MG. I had started seeing him for new onset migraine headaches and the beta blocker he put me on for headache prevention brought on the ocular symptoms. When I complained about the ptosis and double vision he did send me to an opthalmologist for consult.

The opthalmologist strongly felt I did have MG and wanted me to have a Tensilon test to confirm. Plans were made to send me to Mayo Clinic. While arrangements where being made for this appointment, my symptoms were progressing quickly. I started having slurred speech, facial drooping and chest heaviness at night. My neuro's office told me to go to the ER for breathing problems.

I did some research and found some neuromuscular experts about 90 min away. I would not have to get an insurance approval if I saw them in the ER. So, my husband drove me there and one of the MG experts was on call that day. I had a positive Tensilon test in the ER and he admitted me for 2 days to do bloodwork and a repetitive nerve conduction study. I was started on mestinon and prednisone.

I am seronegative so far.

Sometimes you have to take matters into your own hands
BTW: My first neuro was very apologetic.