Lin, so sorry for your setback. I would suggest contacting your neuro as soon as possible for medication instructions. I know a change in a healthy diet has helped me but I still need to rely on mestinon. I am awaiting IVIG.

I live in PA and the heat in the last 2 weeks has done a number on me. I can tell it has affected our MGers as well with a large number of new member in just the last few weeks.

I am severely affected by the heat as soon as it reaches 70 degrees so I can sympathize with your frustration with the long summer ahead. Here are a few things I have learned that help me with the heat. I have already have had my air conditioning on for weeks, sometimes just removing the humidity from the house and keeping it out helps. I set it to 75 during the day and 72 at night. I find I can tolerate higher temperatures during the day. I set it to 72 an hour before bed and I find I can get cooled down to take the stairs easier. If I can get a good nights sleep from being cool I can function much better the next day. I also have ceiling fans continuously going in the room I am in to feel cooler. Drink lots of cold ice drinks, it definitlely helps. Put ice packs on the biggest affected muscles. For me that is the thigh muscles, I have the same problem with tripping and falling. No warm showers, I use luke warm or cold water. No folding hot laundry, wait until it is cool. Have someone else wash the dishes. Even the hot water in the kitchen sink can do me in or standing over the hot stove.

Next is the hardest thing to do. Accept a new lower level of expectation. You are going to be able to do less in the heat. If you push yourself, you will just make things worse. My general rule is what ever amount of physical activity I do, I have an equal amount of rest. If I fold laundry for 20 minutes, then I sit in the recliner for 20 minutes. If I have a day when I go grocery shopping, the next day, I plan a day of rest.

I hope this helps, take it easy this week, it is suppose to get close to 90 degrees by Thursday.
kathie