Quote:
Originally Posted by parbie
By unsure I meant IMO never have a surgery if a DR especially 2 well known TOS specialists cannot definitively diagnose you with TOS however they still would do your surgery. That just doesn't sit right with me.
As far as the study, it is something they are working on, not published yet but it seems right now their focus is more on research and less on patient care. I mentioned my thread because it shows I went through a ton of doctors before I found out about TOS and then a ton of surgeons before I CHOSE one and flew to Denver from NYC just to have mine done by Annest and Sanders due to their experience and especially because Annest was very caring when he spoke to me and sounded genuine. BUT....right after my surgery, he left the state and I was forced to follow up with Sanders who did not perform the op, he is retired. Annest also did not do what he said he would do during my surgery and barely addressed that. Then during my follow up, I flew back to see him because I was not doing well at all, sx were worse and got new sx..he did not address this, he forgot he didn't remove my c-rib, he had one concern only, which was if my long thoracic nerve that he injured during my surgery was healed and he said it is was and went on and on about how ecstatic he was then he said he can't do anything more to help me and I need to back to pain mgmt. By the way, my long thoracic nerve has not healed, he was wrong about that, he rushed my entire appt. I do love his assistant Kathy though, she has always been nothing but super nice but she is not the Dr you are letting cut into you and the Dr you need to follow up with and the Dr who should remember you especially if he botched your surgery....
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I beleive that certain doctors do their preferred surgery or procedures on patients just to support their theory or research. Dr. Sanders research shows he believes that many cases of TOS are actually pec minor syndrome and therefore he was one of the only dr's to test the pec minor and did many pec minor tenomoties to prove his theory. I am assuming his protege Dr. Annest is following in his footsteps. Not to say that many MIGHT have pec minor involvement but not everyone especially if you have a cervical rib. It is also true that Dr. Thompson has just come up with 2 very beleivable studies that show that PM is the culprit in many cases but he also does other surgeries based on what he thinks the patient needs.And it looks like he does the most at once of any surgeons.
Dr Ahn is another one that recommends the angiogram and angioplasty to all his patients as his theory is he can tell where the compression is coming from.It may be a good test but he is the only one doing this for diagnostic purposes. With TOS everyone is different so a cookie cutter approach will never work. All the surgeons in L.A. only do the Transaxial Rib resection for all cases-you cant even get a PM MAC test here. Its too bad that this happens
but explains why many people have to travel to see the right surgeon, and even then it may not be the right decision. I'm so sorry Parbie that this has happened to you-xo JKL