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Old 05-27-2013, 04:23 PM
wvfox wvfox is offline
Junior Member
 
Join Date: May 2013
Posts: 26
10 yr Member
wvfox wvfox is offline
Junior Member
 
Join Date: May 2013
Posts: 26
10 yr Member
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Quote:
Originally Posted by cait24 View Post
How hot is it where you are? And did your sudden exacerbation of weakness follow an increase in temperature? That would be typical with MG. Some of us are more affected by the heat than others. Nerves communicate better with muscles in cold temperatures. I start feeling the effects around 70 degrees, by 90 degrees I am barely functional.

If your symptoms followed an increase in temperature here are recommendation:
1. you have to get cool. Turn on the air conditioners, fans etc. Stay out of the heat and sun, it will only make you worse. For me it is especially important to stay cool at night so I can breath and sleep so I turn the air to 72 degrees at night.

2. If specific muscle groups are weak, alternate ice packs on them to see if it helps. For me this is always the thigh muscles.

3. reduce activity, rest, rest and more rest. It can take days or a week or more to recover from an exaccerbation of weakness.

4. Stay away from any heat, take lukewarm or cold showers. DO not fold hot laundry, Wash dishes in warm water or cook over a hot stove.

Let us know what symptoms are the worse. We may have more sugestions.

kathie
It started after I was up all night and could not sleep.....I'm pretty sure due to prednisone, I had never had neck weakness until a few weeks ago, it bothers me worse than anything. It has been warmer here lately. I bought a neck brace to hold my head up and I keep ice on it and especially at night.Again I thank you all so much!
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