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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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I think you are making the right choice in going to a University hospital. Finding a doctor with a lot of experience with MG makes a big difference.
Most of here, did the round of specialist sometimes for years before getting the proper diagnosis and treatment. MG can be overwhelming. It is literally, life-altering. But it can be managed. People do experience remissions, sometimes for years. We have had a lot of new members lately and there are a lot of recent posts with useful information if you have some time to go over them.
Please fill us in on your symptoms, frustrations and fears. We have many generous members willing to lend there expertise and experience to new members. Just let us know how we can help.
Mestinon is not a cure and only relieves symptoms for a short time. Most MGers take Mestinon and another treatment that gets to the root of the problem - the antibodies. Other treatments include pregnisone, cellcept, imuran, IVIG, plasmaphoresis, etc.. I take mestinon andpregnisone and am staritng IVIG in a few weeks.
Good luck
kathie
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