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Old 05-28-2013, 08:21 AM
peacheysncream peacheysncream is offline
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Join Date: Aug 2012
Location: England, GB
Posts: 194
10 yr Member
peacheysncream peacheysncream is offline
Member
 
Join Date: Aug 2012
Location: England, GB
Posts: 194
10 yr Member
Question What do you know about Hemiplegic Migraine and Topiramate/Topamax?

Dear All,

My computer again blocked me out for months.

I finally have been diagnosed with Hemiplegic Migraines and am on 100mg/day of Topamax.
This is a condition I was born with, a mutated gene from my father but only found since being under a good neurologist who happened to specialise in migraine.

I have collapsed regularly since I was 10 but since my injury, I have had more stroke like symptoms which were mistaken for TIA's.
Do you have this condition or know much about it, or can you refer me to anything that may help or any groups in the UK that I can contact or any online?

Many thanks.
__________________
I am a 36 yr old female who has played football, as a hobby, for 13 yrs. In July 2012, during a game I was slammed to the floor by two angry guys who hit into me so hard that one of them broke their ribs.
This knocked me back onto hard ground leaving me unconscious. I awoke to chronic head and neck pain, sickness and the inability to see or balance.
The paramedics made me walk to the ambulance, instead of placing me on a spinal board, where I was taken to the ER. I was hospitalised with suspected brain hemorrhage for 1 week, then on complete bed rest for 1 month, in a wheelchair for 2 months.

I have been left with PCS, moderate constant head pain, little short term memory, no memory of the accident, balance and sight problems, depression and exhaustion.
The worst problem is collapsing regularly. This has finally been diagnosed as Hemiplegic Migraines , these cause my brain to regularly shut down when I am tired and I then feel the full effects of a stroke (without the bleed on the brain!!) of which the symptoms last 2-4 days.
I have had 6 CT's, 2 MRI's and am under 3 specialists.

I believe everyday is one more towards improvement. Mainly I believe in the power of acceptance not the weakness of complacency or resignation.
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