Quote:
Originally Posted by Mark56
I mean, after all, having Doc reply rudely after performing a trial implant JUST ON THE EVE OF A HOLIDAY WEEKEND is Really Awful! I pray your rep will be able to offer some glint of hope.
I don't know regarding the possibility your body reacts poorly to foreign objects within. Only a Doc who has a sympathetic understanding of your prior history and the current picture could give the medical opinion.
One thing I do know is the first day, at least, of the situation is painful due to the very insertion of the trial leads. Maybe, just maybe, you are experiencing a profound approach of this sort. The only thing which was in me for the trial was the embedding of two leads into the T8/T9 space in my spine as I am a lumbar and leg patient..... I do tell you in all compassionate responsiveness possible, the trial for me was not as painful from a hardware perspective as what you describe.
When you were in recovery after the trial procedure, was the rep with you at that time? Mine was there and working with me on the programming of the trial unit, a bulkier version of the actual stim generator which was worn about my waist in a Velcro secured belt. Now, when he was there, I was still very much feeling the effects of sedation so I pretty much felt no pain, but as the rep worked with me on the programming, we "dialed in" the programs so I could sense the effect of the stim, and I went home with it running.
The next day was a pretty sore day, but by day 2 and then day 3 I was crying.... and not from pain, but from the realization I was NOT feeling pain in my lumbar and legs. This is where our stories so dramatically vary. So, work that discussion with your rep today, just in case there is something maybe they can try. They may even be able to isolate whether the leads [which are so tenuously secured in you at this time just by a couple of stitches at your insertion point and GOBS of tape to try to hold it in place] could have moved at all, and may be needing thus to have their nimble fingers operating the computer.
Last of all, I will pray all will be well,  |
My rep was with me in recovery and I was in pain. I told the nurse that I was hurting and she said you will just have to tough it out for a couple days. I didn't get anything to secure it to my waist, I have to hold the battery or wear something that has a pocket to put it in. I am pretty sure the leads did move because two of my groups don't work like they used to, but the other two I still feel in my leg. They never reached my ankle which has the most pain. It is hard to decide because I have noticed that I can walk a little better sometimes. But I can't walk or stand for very long because of the pain in my back. I just wish I had someone to talk to about it. It is hard doing this over a holiday weekend.
I want to thank you for talking to me about this, I feel so lost and you are helping me feel better. Thank you so much!!! I was feeling like I was going crazy...lol