I so sorry you are going through all of this. I took those same meds with the awful experiences of the side effects. I understand how hard it is for others to understand too as my husband was having problems in this area.
He is very helpful now though. It takes some getting used to.
My eye doctor found by a routine eye exam that I had a problem and sent me to a neurologist who saw the same thing. Pseudotumor. She sent me immediately to get a fluoroscopy which showed my CSF not so bad, thus the meds were administered and Neurosurgeon visits began. After 6 months of that I was sent for another fluoroscopy which showed very high CSF, thus emergency eye surgery then the VP Shunt placement on 5/1/12.

While the shunt has helped it has not been without its own problems too. In February I had to have a spinal tap, due to headaches were back, which indicated my CFS was still too high. Easy fix was for my neurosurgeon to adjust it. Since then things were going well until 3 weeks ago when my vision changed. This was after having a sudden severe headache that put me in bed for 24 hours. I had a fluoroscopy that showed my CFS at "borderline" range so they are wanting me to go to a new neurologist. I now looking for someone who can help me to deal with this new situation.