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Old 05-29-2013, 09:36 AM
Juniebear Juniebear is offline
Junior Member
 
Join Date: May 2013
Posts: 34
10 yr Member
Juniebear Juniebear is offline
Junior Member
 
Join Date: May 2013
Posts: 34
10 yr Member
Default Would you get a 2nd opinion?

I am kind of in a frustrating situation. I was told by my PCP in February that all my symptoms are pointing to something and in his opinion he thought possibly MS. So, had the MRIs done, one lesion found in my brain and none on my spine. Blood work was done to rule out Lupus, Lyme, etc. and all came back negative. Vitamin D and B12 are good as well.

The person who originally read my MRI said "lesion consistent with MS". I was sent to a neurologist and she said it's a nonspecific lesion and she cannot say when it appeared or why. Also, says this doesn't appear to be MS as I don't have any lesions. No other tests have been done. No nerve conduction test, no EMG, no LP. She basically, as of yesterday, told me it's "all in my head" and prescribed an anti-seizure medication. Originally she wanted me to take an antidepressant, but I refused as I am not depressed and have had a bad experience with those before when I was prescribed and didn't need them. (severe VitB deficiency that wasn't found until AFTER they put me on zoloft that I did not need!)

Now, I asked this neurologist about other tests and she chuckled and said it isn't necessary. Asked if I am a type A person/perfectionist and if I had any changes in environment and/or life lately. I REALLY felt like she was dismissive and not listening. She seems to be fixated on the ONE symptom of crawling feelings and not addressing all the rest. I talked about spasticity and she looked at me like she didn't believe me... asked if I was SURE it is spasms. Also, I am heavier so when I talked about my legs being stiff and hurting; some days can hardly walk, she just kind of dismissed it and said it was expected. Um... I've been heavier and had no leg/foot issues! (in process of losing weight.)

Once this all started very badly in February I thought about it and there have been a lot of symptoms for years that were small at first and have been increasing and seem to have all come to a head this winter. If I think about it all symptoms started when I was about 16/17... I'm now 33.

I can post a list of symptoms if anybody is interested or if it helps with helping me. Thanks!

I am thinking a second opinion is warranted, but this neurologist is supposed to be a MS Specialist so shouldn't she know best?
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"Thanks for this!" says:
ANNagain (05-29-2013), GladysD (05-29-2013), Kitty (05-29-2013), SallyC (05-29-2013)