Junior Member
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Join Date: May 2011
Location: Champaign, IL
Posts: 47
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Junior Member
Join Date: May 2011
Location: Champaign, IL
Posts: 47
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time to move on!
Looking at me, you can't tell I have MG. I don't have ptosis, I walk normally, all my blood tests are normal, and I pass those stupid reflex and strength tests every time I see my neuro. But MG kicks my ***** to the sofa if I overdo it, which none of my doctors have seen in the 4 years since symptoms started and the 2 since my diagnosis. I started with generalized and only in the last year have bulbar and ocular symptoms started.
On my 3rd neuro (the first two dismissed me for psycho or CFS), my first EMG was fine, but in the middle of it I realized that it is with repetitiveness that my weakness comes on. So my neuro did a repetitive stimulation test right then which was abnormal. Which got me a referral to a MG neuro for a SFEMG, which was abnormal.
I'd start looking for someone new if I were you. Someone needs some schooling.
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