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Old 05-29-2013, 12:55 PM
DFayesMom DFayesMom is offline
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Join Date: Sep 2012
Location: Columbus
Posts: 304
10 yr Member
DFayesMom DFayesMom is offline
Member
 
Join Date: Sep 2012
Location: Columbus
Posts: 304
10 yr Member
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Quote:
Originally Posted by NormaW View Post
Hi,

I am doing vision therapy using a computer program called vizual edge. I have three exercises: depth perception, stabilization and tracking. The program is actually for athletes to increase there performance by improving there sight but it works for others. I also do a gaze stabilization exercise every day (turn my head to one side and look at my finger at the opposite side - 30 times). I have found that my eyes burn a lot and are sore, but my neuro opthamologist said if it is sore you have hit onto the right things. I always have a headache and I believe it is from the vision issues. The post traumatic vision syndrome gives you a low blink rate which can dry out your eyes, I make a point of blinking a lot and it has been suggested to use liquid tears.

I know what you mean about reading, I would love to read or watch t.v. and when I start it is hard to make me stop and if I don't I can pay for it for days. It has still been suggested that I should not drive because my vision reaction is extremely slow.

I now have prism reading glasses and they also sent my prism sun glasses which they mistakenly put my reading prescription in (boy did I have a hard time figuring that out).

CBC radio has been my saviour and I listen to it for hours every day, but I admit I am so bored and it is hard to keep depression at bay when you really can't do anything which is enjoyable. I miss a lot of my kids events.

My neuro opthamologist says it can take anywhere from 6 months to 2 years. I am in accounting as a profession and I can't really work until I get working vision, I find it extremely slow and there are some who have not had a great deal of success while other have had life changing experience.

I am going to Toronto in July to be given more vision therapy instruction. It is too far (5 hours) for me to go weekly for therapy so they are to teach me how to do it at home.

How long have you been doing the therapy? It took me almost a year to get diagnosed.

Good luck
I can't work either but because of messed up circumstances, I'm not on disability. Thankfully though, I am receiving severance pay for the next four months.

I did sensory integration therapy the month of March and started vision therapy in April, so about a month and a half of the traditional vision therapy. It also took me a long time to get diagnosed--2+ years from my first symptoms, but 6 months after my PCS diagnosis. Unfortunately, I was doing better and better for those 6 months, becoming less sensitive to light and more able to use my eyes, but I kept using the computer even when my eyes would start to get strained. That proved to be my downfall! I ended up blowing out my eyes right before my neuro-op appointment (that's the best way I can describe it!), and it's really only been downhill from there in terms of my eye strain. It took me a while to figure out I just can't use the computer AT ALL.

I wish I could go back in time and do things differently because this setback has just been huge. I'm just waiting for the gradual improvements I see when doing my vision therapy to start making a real tangible difference in how well my eyes process the world around me.
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I have recovered my cognitive function, and I've overcome severe vertigo through sensory integration therapy. Wellbutrin has helped me escape depression. I have recently had a few stress-related migraines, as well as headaches stemming from eye strain. I'm also dealing with tinnitus, lack of stamina, extreme light sensitivity, and eye pain. Diagnosed with 9 different vision issues: convergence insufficiency, pursuit eye movement deficit, egocentric visual midline shift, photophobia, visual information processing delays, accommodative insufficiency, saccadic eye movement deficit, lack of coordination, and central peripheral visual integration deficit.

*First concussion: October 2010. I was pregnant and got rear ended. I associated my mild PCS symptoms with baby brain and blamed my light sensitivity on allergies and dry eyes.
*Second concussion: December 2011. I hit my head on a wooden beam, saw stars but did not lose consciousness, and I had very disturbing PCS symptoms but didn't go to the doctor.
*Third concussion: August 2012. I caused a car accident as a result of PCS symptoms. Thankfully no one was injured but me. My husband confronted me, and I finally sought help and took medical leave from work. My symptoms worsened, and I developed severe vertigo.
*Fourth concussion: November 2012. I was riding in a car with a friend and we were hit head on by a driver who lost control of her car. I didn't have a big increase in PCS symptoms.
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