Thanks everybody! I am happy to say my PCP called back within minutes and is working on the new referral for me. He's calling a few neurologists in the network to see who can get me in ASAP. He also isn't happy about the situation and feels an LP is definitely warranted. I hate needles so not something I am looking forward to, but really want answers.

I am glad to hear that I'm not being unreasonable about this. I guess I was thinking since this previous neuro was a MS Specialist I should just take what she says, but it didn't feel right to me. Everything else is ruled out so not sure why she is being this way. If it's something else, great. But, she wasn't giving me other options other than crazy either.

She said sometimes we have a little issue that we let our minds blow out of proportion and think it's more than it is. I am not at all Type A or one to get worked up and blow things up. I'm very laid back and if anything let things slide too often... which is why I've had symptoms for years and didn't do anything until it became unbearable and messed with my daily life.

I'm just very happy I have a great PCP.


And to answer a few questions, I live in a very rural area and any neurologist is at least a 3 hour drive. This last one was closest. The hospital that my PCP is looking at now is farther away (5 hours), but we'll make it work and take that trip because both my husband and I feel it's needed. Actually, if not for my husband I probably would have just decided to let this go once again as I'm not really that assertive. Where as hubby is being a pit bull with this and not willing to let it go at all without a definite answer.