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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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I absolutely agree, it is time to find a new neuro. I would definitely recommend a neuromuscular specialist at a large teaching hospital or going to an MDA clinic. Insist on both ACHR and MUsk antibody testing and if they are negative ask for a single fiber eMG. If you are having a lot of eye symptoms, it may be quicker to have a neuro-optomologist diagnosis you. I went that route, and got on mestinon and received a fast track referral to a neuromuscular specialist knowledgeable in MG.
I am so sorry you are having such a bad experience.
kathie
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