hi - this is so distressing for you both. Has anyone looked at the possibility of systemic vasculitis.....here are some of the symptoms. No one will usually have all of them. The burning sensation and headaches you mention are classic symptoms of vasculitis as are the weakness and 'nervous system' disturbances you describe.
quoting from a website
Quote:
What are the symptoms?
A vasculitis syndrome may begin suddenlyor develop over time. Symptoms include:
headaches, especially a headache that doesn’t go away
fever
malaise (feeling out-of-sorts)
rapid weight loss
confusion or forgetfulness leading to dementia
aches and pains in the joints and muscles
pain while chewing or swallowing
paralysis or numbness, usually in the arms or legs
visual disturbances, such as double vision, blurred vision, or blindness
seizures, convulsions
problems with the kidneys or other organs
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http://www.ninds.nih.gov/disorders/v...vasculitis.htm