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Old 05-31-2013, 07:24 PM
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cait24 cait24 is offline
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Join Date: Sep 2012
Location: Newtown, PA
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10 yr Member
cait24 cait24 is offline
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cait24's Avatar
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
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Quote:
Originally Posted by fbodgrl View Post
Currently I am taking
Tegretol 200mg 2x a day
Cymbalta 120 mg 1x
Norflex 100 mg 2x ( during day)
Flexeril 20 mg 1x (at bed time)
Lortab 10/500 mg 1-2 pills every 4-6 hrs

As far as "pain relievers". I started with regular strength Vicodin when I originally had my nerve entrapment that started all this ( prior to my surgeries or RSD). Then I went to Vicodin ES. I have been on the Lortab on and off for a few years and on it daily for basically 1 1/2 yrs. I'm trying to work with my PMD to change that around as I am taking so much daily I'm concerned about my liver. This is becoming an uphill battle.

I've tried Tylenol 3 and Percocet 5/325. Neither were helpful so it was back to the Lortab.

I've taken
Lyrica- horrible weight gain
Dibenzyline-worked great for night sweats and shocking pain
Did Tegretol break your cycle of pain? I had RSD of the left foot 25 years ago. I spent 10 years trying PT, tens, high-volt, desentization therapy, nerves blocks, and dozens of the usual pain medications. Finally, I found a neuro who put me on Tegretol, the theory was that it would break the constant nerve firing like it does for epileptics seisures. He eases the dose up, to the point I was barely functional. I was extremely sleepy and could barely remember the names of people I knew very well. But after many months on the drug, these eased me off of it and the cycle of pain was gone. My limb has dystrophied. I had little sensation or motility but the pain was gone. And it remained that way for nearly 15 years. I have had some recent break through pain, reeally minor compared to where I was 25 years ago. I feel that neuro saved my life. Tegretol worked so well for me. I am often surprised that I do not see it tried more. Maybe I was just lucky.
kathie
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