Debbie,
I too have muscle wasting in my CRPS left leg. I also have bone demineralization. Mine is from having CRPS for years before it was diagnosed. Without treatment, I got into the habit of not using my leg because of the pain. I have Dystonia and spasticity. Literally, the muscle spasims caused permanent contracture. The CRPS has now spread to my pelvis on down both legs. I do not have full body CRPS ... yet. I am sorry to hear that yours has spread that far.

I dont have the answer. You do need to contact your doctor and physical therapist. If CRPS is caught early, physical therapy can help. Regardless, it is important that you keep trying to use your muscles. Personally I opt for aquatic therapy too because it allows you to use your muscles without over stressing them. I can walk in the pool; outside of the pool I usually use a wheelchair. The only other thing I can think of is perhaps you need to add more protein to your diet. Of course, I am pulling at strings here.

I hope you find the answer and quickly. Please take care of yourself.