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Old 05-31-2013, 10:50 PM
Suebear Suebear is offline
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Join Date: May 2013
Posts: 4
10 yr Member
Suebear Suebear is offline
New Member
 
Join Date: May 2013
Posts: 4
10 yr Member
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Quote:
Originally Posted by Porkette View Post
Hi Suebear,

A few yrs. ago my Dr. put me on Neurontin for bad headaches and it was then that I started to have absence status sz. then after watching NBC Dateline they had one of the drug co. former employees who turned them in for doing off market labeling with the drug along with doing an investigation on the drug co. only to find out that 72 people took their life while on the drug, and over 60 people who never had epilepsy started to have sz. right out of the blue. There was a class action lawsuit and I got involved with many others and that's when they busted the co. for over $210 million.
Since that time I've learned to have a DNA test to find the right sz. meds to take with the least side effect. I've had surgery twice to reduce my sz. and it was a great help. Here's wishing you well and May God Bless You!

Sue
Neurontin did nothing for me when I took it so I honestly haven't a clue about the drug other than the fact it couldn't touch my case nor the fact it was unable to touch my needs so it got removed from the type of medication list. I went onto another AED that was not taken at the time which put me one step closer to having the first surgery done as I had reached the mark of 15 different medications over the years. As for surgeries, October 2011 made my third and final surgery since we now know the DBS has the ability to control and manage the seizure activity better due to the higher amount in settings.
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